school | autism awareness hawaii

or should i say the lack of wanting to go. he really does not enjoy making the transition to school lately. i am not sure why. he cries and fights me allt he way. when he gets there he is ok until i leave. then again he is upset. more than likely he is not having the type of reinforcement at school that would make him want to be there. not sure why or what is going on with that.

water fun | autism awareness hawaii

Hekili loves playing in the water.
Be it the beach, pool, or tub. He can stay in the water for hours.
I have heard that water is very therapeutic for our asd kids. 
I do know he loves it and swims like a fish.

you have to check out this blog | autism awareness hawaii

TACA | autism awareness hawaii

TACA is a great resource for families living with autism. they have tons of links and support groups in different locations! If you aren't already a member go their site and sign up!!

the looks | autism awareness hawaii

while shopping, walking around public places, out to eat, or even at school it is all around us. the looks. we get "the look" all the time. from people who are quick to judge some one else's parenting skill or even the child who is acting out. my son will talk very loudly, yell out, cry, and script while in public and at home. people look at us, and say things behind their whispers. we never get used to it.

on the bright side of it all ... i have learned to really be more understanding about situations i see while out and about. when i see a child having a meltdown in the middle of the store i don't think badly about them or their caregiver. in fact it is the total opposite. i can totally relate and will offer a warm understanding smile and hello. we never know what is really causing the situation at hand but i know that i am one less person they get "the look" from.

Look at the signs ...

Hekili was doing fine going to school. Never fought me about getting out of the car or asked to go home with me. His first week of Kindergarten was fine. Then Monday his EA that was gone all summer came back. Tuesday he wouldn't get out of the car, I took him home thinking maybe he was getting sick. Wednesday he didn't want to get out of the car again. He dropped to the ground and cried and the EA's tried to grab him but eventually it took me walking with him to class. The next two weeks he was in this routine of crying and not wanting to go to school.

I became concerned and asked what was going on that was aversive to him in school. I kept getting the he did fine all day. We don't know why he doesn't want to get out of the car int eh morning. I know my son, I know that he only acts out like this when he is not liking the setting he is in.

August 25, 2009, Tuesday morning, same thing. He cried and refused but we managed to get him to class. That morning I took his lunch to school a little early so i observed his EA with him. As i spoke to one EA I watched the other who was sitting next to him at his desk. She wanted to get his attention so she took her elbow and bumped him in his arm and tells him to get his pencil out of the pencil box. He was in a verbal stim so she tells him again but in a very frustrated and unhappy tone.

It was heartbreaking to see this right in front of me. I don't believe that using her elbow to get his attention was at all appropriate. I also didn't appreciate that she got frustrated so easily when she only prompted him once to do a task. He is 5 and has Autism. It sometimes take a few prompts to get him to do the task at hand.

I then pulled her aside and told her that it was not appropriate and that I did not appreciate it. She was very defensive and unapologetic. Which of course made me more upset. I reported to the BISS that afternoon and she was taken off the case the next day.

Wednesday morning, august 26, 2009, he didn't want to get out of the car. That day he didn't work with the EA, who was being rude to him.

Thursday, August 27, 2009, no incident getting out of the car. Not one protest or struggle to get him to go to class. He complied totally. He knows that the EA is removed from working with him. He had a good day.

Friday, August 28, 2009, Again no incident getting out of the car. He was actually ok for the past two days. Once the EA was removed from his case.

My concern is if she behaved in such a manner with me, the parent, only 10 feet away, how was see behaving when I was not around? This is a huge concern for me. I am relieved that he is ok with going to school again but I feel like I should have done something sooner.

Often our children on the spectrum don't know how to communicate what is going on in their day. His way of telling me something was wrong was to avoid going to the setting that was causing him stress. Listen to the signs and be sure to talk to your BISS, EA's and whoever else to try to figure out what may be causing the new behaviors. We know our children. Listen to their signs.

While sick ...

I notice that behaviors go up during the days that lead to being sick. More protesting but he still doesn't say that he isn't feeling well. He just doesn't want to do things that are not what he wants to do.

He also has a new thing he does. He makes fists and holds them like that all throughout the day. Not sure why yet. Haven't figured that one out. Maybe sensory related.